Will's day with the doctors.

We had a very long day yesterday, but all in all a positive one. At Children's Hospital of Seattle they attempt to schedule all your appointments in one day which means that we had four apointments starting at 10:30am and the last one at 3:00pm. Needless to say, William and I were both exhausted by the end of it. BUT, we had mostly positive news which is always welcome. Add to that the fact that William started pulling up this week (very unsteady, but he's doing it) and we are feeling good about our little guy. On to the details...

We started the day with two neuromuscular specialists. I have never seen anyone examine William like these doctors. We were there for an hour and a half! At the end of the visit they didn't have much new information, but did order some blood work. As far as I know we are looking at William's thyroid and for a couple of disorders that cause muscle degeneration. I don't think that anyone feels like these are likely problems, just more of the "ruling it out" tests.

From there we saw an occupational therapist who watched Will eat his lunch. She felt great about Will's eating. He is doing a really good job of feeding himself and isn't showing any food aversions (which originally they were a bit concerned about). She does not need to see Will again.

Then to the nutritionist. Will gained a lot of weight! He still isn't on the chart, but the trajectory of his weight gain shows catch-up weight gain which is what we want to see. If he continues at this pace we will be on the chart very soon. This was by far the best news of the day. The nutritionist also said she didn't need to see Will again.

Our last appointment was with the developmental PA. She mostly just followed up with all of our other appointments. She was also pleased with William's progress and thought that his pulling up was quite an accomplishment. We finished with a blood draw (harder on me than William) and that finished out a very long day.

William will be visiting the geneticist in September and we are also scheduled to have a swallow study done (he is choking/gagging more than normal when he eats) and an appointment with the audiologist to check his hearing. We've been having some ear infection issues since about March which is common with kids that have hypotonia. We just want to make sure that it isn't affecting his hearing.

So, that was Will's very long day. This is how he coped...